Polycythemia Vera FAQ
What causes Polycythemia Vera?
Polycythemia Vera is typically caused by mutations in the JAK2 gene, which leads to an excessive production of red blood cells.
What are the symptoms of Polycythemia Vera?
Common symptoms include headaches, dizziness, blurred vision, fatigue, and a ruddy complexion. Some may also experience itching after a hot shower.
How is Polycythemia Vera diagnosed?
Diagnosis often involves blood tests to check for elevated red blood cell levels, and sometimes a bone marrow biopsy may be needed.
Is Polycythemia Vera hereditary?
Polycythemia Vera is not considered a hereditary disease, but certain genetic mutations may increase the risk in some individuals.
How can Polycythemia Vera be treated?
Treatment options may include medications like hydroxyurea, phlebotomy to reduce blood volume, or targeted therapies like Jakafi.
Can Polycythemia Vera lead to serious health issues?
Yes, if left untreated, Polycythemia Vera can result in serious complications such as thrombosis, heart attack, or stroke.
Is there a cure for Polycythemia Vera?
Currently, there is no cure for Polycythemia Vera, but effective management strategies can control symptoms and reduce risks.
How often should I see a doctor if I have Polycythemia Vera?
It's essential to have regular follow-ups with your healthcare provider to monitor your condition and adjust treatment as necessary.
What lifestyle changes can help manage Polycythemia Vera?
Maintaining hydration, avoiding smoking, regular exercise, and a healthy diet can be beneficial for managing the condition.
Are there any risks associated with treatments for Polycythemia Vera?
Like any medication, treatments can have side effects, so it's crucial to discuss potential risks and benefits with your doctor.
Can I lead a normal life with Polycythemia Vera?
Yes, many people with Polycythemia Vera lead healthy, active lives by adhering to treatment plans and regular check-ups.
What role does blood donation play in managing Polycythemia Vera?
Phlebotomy, or blood donation, is a common treatment to help reduce red blood cell volume in people with Polycythemia Vera.
Are there support groups for people with Polycythemia Vera?
Yes, many organizations provide support groups and resources for individuals dealing with Polycythemia Vera.
How can I cope with the emotional aspects of living with Polycythemia Vera?
Speaking with a therapist, joining support groups, and connecting with others who have the condition can help manage emotional challenges.
What should I do if I experience severe symptoms of Polycythemia Vera?
If you experience severe headaches, vision changes, or any unusual symptoms, seek medical attention immediately.
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Information provided by Dr. Nithya Priya Raju. Reviewed by Dr. Mohamed El Khouly